Autonomic Dysreflexia (AD) is a potentially life threatening complication of spinal cord injury that happens at T6 or above. AD is a medical emergency and should be treated immediately. The most common causes of AD are a bladder being too full, overfull bowel, pressure sore or irritated skin and sexual or reproductive activity. The main treatment of AD is to remove the cause.
- What Do I Need to Know?
- Know your Blood Pressure
- Possible Signs of AD
- Know causes of AD
- How to prevent AD
- What Can I Do?
- Learn how to prevent AD
- Possible Causes of AD
- If you go to the ER
- Conclusion & Resources
- Resources for physicians and caregivers
- Resources for people with SCI and their families
AD is a potentially life threatening complication of spinal cord injury at T6 or above. It is the body’s reaction to pain or discomfort in an area of the body that is below the level of the Spinal Cord Injury. This causes the blood pressure to rise, sometimes to a very dangerous level. It may also be accompanied by other signs and symptoms. AD is a medical emergency and must be treated immediately. If it is not properly treated it can lead to stroke, heart attack, seizure and death.
WHAT DO I NEED TO KNOW?
Know your blood pressure
A change in blood pressure of 20-40mmHg is a telltale sign of AD.
Know what your normal blood pressure is so that you can recognize if it has increased.
Possible Signs and Symptoms of Autonomic Dysreflexia (AD)
- Elevated blood pressure: KNOW WHAT YOUR BASELINE BLOOD PRESSURE IS
- Sudden pounding or throbbing headache
- Sweating or flushing above the level of injury
- Goose bumps above the level of injury
- Increase in frequency or severity of spasms
- Metallic taste in mouth
- Feelings of apprehension or anxiety
- Slow pulse rate (bradycardia)
- Other symptoms can include: nasal congestion, blurred vision or seeing spots, nausea, difficulty breathing or changes in heart rate.
Causes of Autonomic Dysreflexia (AD)
- The most typical cause of AD is a bladder that is too full. If using a Foley catheter, the tubing or drainage bag may be kinked or blocked or overfilled. A condom catheter that is set too tight may also result in AD. AD may also be causeD by urinary tract infections or bladder/kidney stones. Bladder tests such as urodynamics and cystoscopy may also irritate the bladder resulting in AD. Read up on Bladder Management in this resource.
- An overfull bowel, constipation or impaction.
- Pressure injury or irritated skin: this includes extreme heat, cold or pressure on the skin below the level of injury; trauma to the skin including sunburn, cuts, burns and insect bites; tight clothing or rivets on jeans; ingrown toenail. More on Skin Health after SCI in this resource.
- Sexual or reproductive activity: this includes intercourse, the use of vibrators, pinched genitalia, orgasm and ejaculation. Menstrual cramping and labour (uterine contractions) can also cause AD.
DID YOU KNOW?
The main treatment of AD is to remove the cause
WHAT CAN I DO?
Learn How to Prevent Autonomic Dysreflexia
Be aware of the possible triggers mentioned above. Avoiding these triggers is the key to preventing AD. Try to reduce the chances of irritation below your level of injury which you may not be able to feel.
- Wear loose clothing
- Follow a bladder program so that your catheters are draining well and your bladder does not become over full.
- Maintain a bowel program so your bowel is emptied regularly
- Check your skin regularly
- Keep clothing and bed sheets smooth to prevent irritation from wrinkles
- Perform regular foot care to prevent ingrown toenails
- Attend to any infections early
- Learn to recognize the symptoms and triggers of AD
- Teach your family, friends & caregivers how to help you through an episode
- Sit up OR raise the head of the bed (this will help to lower the blood pressure)
- Check the bladder
- Check the bowel
- Check the skin
- Seek medical attention if the symptoms are not relieved by checking all the possible causes
If you go to Emergency:
- Tell the emergency room staff that you think you may have Autonomic Dysreflexia and need immediate attention
- Give them your AD card (print this document or pick up a wallet-sized card from the SCI Resource Centre at GF Strong or Blusson Spinal Cord Centre)
- Ask them to check your blood pressure immediately
- Request that you keep sitting up as long as your blood pressure is high
- Ask the emergency room staff to look for causes of the problem: suggest that they check for causes in this order:
- other causes
- Suggest that the health-care professional use anesthetic jelly before changing a catheter or checking the bowel
- You may need medication to bring your blood pressure or heart rate back down to your normal level.
WHO CAN I TALK TO ABOUT THIS?
Physiatrist (Physical Medicine and Rehabilitation)
A physiatrist (rehab specialist) is your first point of contact regarding signs or questions about AD. If you think you may be at risk, or you have experienced symptoms, see your physiatrist. A Physiatrist can assess your risk of AD, test your blood pressure, and offer medications or strategies to use in the event you are not able to resolve AD yourself.
Outpatient/Spine Program Nurse
The outpatient nurse is a resource for people with spinal cord injury and local medical professionals after the person returns to their community. The nurse also works with people who utilize outpatient services at GF Strong.
The outpatient nurse can educate you about AD and help to problem-solve symptoms or triggers of AD. They may also have useful resources to help you in case you need to educate your caregivers, family or to use in an emergency.
Emergency Room physician or First Responders
In the event of a sudden increase in blood pressure you can’t resolve on your own, you may encounter paramedics/EMTs and ER physicians when you go to the ER. It is very valuable to always carry some form of information on you on how to address AD, such as the AD Wallet Card.
Autonomic Dysreflexia is a sudden dramatic increase in blood pressure that is a part of life for many people with SCI above T6, and may be a medical emergency if you cannot resolve it on your own. It is often preventable, but some may experience it often and require more treatment. The most crucial way to prevent it is to know your blood pressure and learn how to spot and treat the symptoms.
Resources for your physicians or caregivers
- The ABC’s of AD – ICORD/Justice Institute of BC.
- Autonomic Dysreflexia – Cragg J, Krassioukov AK, Canadian Medical Association Journal (CMAJ).
Resources for people with SCI and their families
- AD Wallet Card – a small wallet card on AD designed to inform first responders/ER physicians about treating AD, that should be carried by anyone with signs or risks.
- Autonomic Dysreflexia – HealthLinkBC.
- The Mystery of Autonomic Dysreflexia – National Rehabilitation Hospital, Dublin, Ireland.
- Autonomic Dysreflexia – Christopher Reeve Foundation.
This website contains general information about medical conditions and treatments. All information, content, and material of this website is for informational purposes only and are not intended to serve as a substitute for the consultation, diagnosis, and/or medical treatment of a qualified physician or healthcare provider. (c) 2018 Spinal Cord Injury BC